Messages of Support coming in for MSA Awareness Month
March 13, 2011
From Sharon Silengo, wife of MSA patient Jon Silengo, North Dakota USA: “Governor Dalrymple of North Dakota agreed to issue a proclamation about March being Multiple System Atrophy Awareness Month and one of our local Television Stations, KFYR-TV interviewed me and did a wonderful story.”
Story:
http://kfyrtv.com/News_Stories.asp?news=47254
Video:
http://kfyrtv.com/News_video.asp?news=47254
From James McClellan, MSA patient and Advocate in New Hampshire USA: “I am happy to tell you that the Governor of New Hampshire signed a PROCLAMATION making the month of March MSA month.” If you’d like to approach your government officials you can download a copy of the proclamation form that James developed.
From the SDS/MSA Support Group, Inc in the USA: “The SDS/MSA Support Group, a nonprofit organization located in the United States is working in concert with “Miracles for MSA” to further enhance national awareness and to raise money for awareness, education and research.”
They will be sending an official press release out on March 10th, a preview is available on their website - Also find SDS/MSA on Facebook
From Cyndi Roemer, MSA Advocate in New Jersey USA: ” Support each other’s efforts. Each individual triumph is an accomplishment for all. There really is strength in numbers! We’ve launched the Movement for Support & Awareness Facebook page to showcase our efforts in NJ, which include an upcoming awareness & fundraising event, and the Faces of MSA Campaign for everyone to join. Please visit and like our page to stay abreast of our activities and progress.”
From Mary Satterwhite, support group leader Tampa, Florida: “Last night our City Council proclaimed March as Multiple System Atrophy Awareness month for the City (of Temple Terrace, Florida)” — Also see Mary’s MSA blog
From the MSA Trust in the United Kingdom: “Unite in a common goal in MSA awareness month: raise awareness of this rare neurological disease. Please spread the word by adding details to your Facebook page. Why not try and get your local newspapers interested in your story too – if you live in the UK, please ask journalists to look at the MSA Trust’s website for information. We are happy to speak to them too! (Tel: 020 7940 4666)” — Also find the MSA Trust on Facebook
From Dr. Sid Gilman – North American MSA Study Group: “The press release is fine. I am delighted that you are moving ahead like this, it is a great idea. Best regards, Sid Gilman for the North American MSA Study Group” — See Dr. Sid Gilman’s website
From Dr. Gregor Wenning – European MSA Study Group: “Thanks alot for this splendid effort, we will circulate the announcement to the 25 academic EMSA teams across Europe and Israel.” — See Dr. Gregor Wenning’s entry in Wikipedia