Event Calendar
If you have an event that benefits an MSA supporting organization that you’d like to see included on this page please email pbower@accesscable.net and request that it be included here.
USA: In Person Meetings – list from MSA Coalition
USA: In Person Meetings – list from CurePSP
UK: In Person Meetings – list from MSA Trust
UK Events: See the full list of fundraising events held in support of the Multiple System Atrophy Trust
January 2013
Jan 19: MSA Friends Meet & Greet (Bob Evans Restaurant, Xenia, OH USA)
Jan 29: The Rome, Georgia Parkinson’s Support Group will be having a special meeting devoted to MSA, and Lewy Body Dementia on Tuesday, January 29th from 6pm – 8pm at 5th Avenue Baptist Church, Rome, GA. See National Parkinson Foundation Georgia
February 2013
Feb 2: Fundraiser: Casino Night in benefit of The Gary Brown Foundation for MSA (Pittsford, NY USA)
Feb 5: Fundraiser: Candle Party (Falkirk, Scotland)
Feb 8: Webinar: Dealing with Depression in PSP, CBD and MSA, Sponsored by CurePSP
Feb 28: Rare Disease Day (All around the world)
Washingon DC area – Rare Disease Day at the NIH Representatives of the MSA Coalition will be in attendance
Austin, Texas – Rally at the Texas State Capitol – Sharon Sutton will be speaking about Multiple System Atrophy
Belgium – MSA events will be held in Belgium - Details TBA
Feb 28: Philip M Fortier: I will be participating in Rare Disease Day by visiting my state legislators in Lansing, Michigan…. I will be representing my brother Joe and all those people with MSA… “The National Organization for Rare Disorders (NORD) has launched a nationwide campaign to help leaders of rare disease patient organizations — and those who support them — educate their state officials….” Please consider working in your own state to make your legislators aware of MSA and the need for more research targeting this disease. The squeaking wheel always gets the grease!!! http://www.rarediseases.org/news-events/news/rdd-states-2012
March 2013
Mar 1-31: Multiple System Atrophy Awareness Month (All around the world)
Mar 1: MSA Indiana Awareness Luncheon (Overlook Restaurant, Leavenworth IN USA)
Mar 1-3: Research Conference: Alpha-Synuclein in Parkinson’s Disease & Related Neurodegenerative Diseases (Dubai, United Arab Emirates)
MSA is on the agenda, several MSA researchers will present
Mar 6-10: Research Conference: AD/PD Conference (Florence, Italy)
There will be several posters on MSA and one talk on MSA and Biomarkers
Mar 8: Bob Summers will be on WDKN radio discussing MSA – listen live online at 12:30 EST
Mar 9: Patient/Family Conference - Hospital of Bispebjerg (Copenhagen, Denmark)
Sponsored by the National MSA Association of Denmark:
Landsforeningen Multipel System Atrofi
Formanden journalist Birgit Meister kan kontaktes skriftligt på:
Tagesmindevej 8
2820 Gentofte
E-mail:msa@msa-danmark.dk
Telefon: 40 40 49 90
Mar 9: Fundraiser: Dance Party (Polmont Masonic hall, Polmont, Scotland)
Mar 9: Fundraiser: Marv Madness: Raising MSA Awareness One Drink At A Time (Columbus, Ohio)
Mar 10: Fundraiser: The Argus cycle tour See also Facebook: Ride for MSA (Cape Town, South Africa)
Mar 11-17: Brain Awareness Week (All around the world)
Mar 15-17: Patient/Family Conference: National Ataxia Foundation 56th Annual Membership Meeting (Detroit, MI USA)
Mar 16-23: Neurologists Conference: AAN Annual Meeting (San Diego, CA USA)
Mar 16: Brain Health Fair (San Diego, CA USA)
Mar 19: Fundraiser: Bingo Night (Westquarter Primary School, Falkirk, Scotland)
Mar 19: Fundraiser: BombShells Hair Salon and Spa Fashion Show and Auction (Murfreesboro, TN)
Mar 23: Fundraiser: 5 Mile Run/Walk for MSA - Hosted by Dayton Barefoot Runners (Fairborn, OH USA)
** Check out the story of last year’s event
Mar 30: National Doctors Day
April 2013
Apr 1-30: Parkinson Disease Awareness Month
Apr 20: MSA Walk for Jim Davis (Elijay, GA USA)
Apr 21: London Marathon - a team will run in support of the MSA Trust
Apr 27: Patient/Family Conference: Sponsored by CurePSP - Boston Marriott Peabody (Peabody, MA USA)
May 2013
May 5: Fundraiser: Bingo at the Brooklyn Hose Co. (Brooklyn, PA USA)
Doors will open at 11AM and Bingo will start at 1PM. Tickets will be $30.00 for up too 24 cards. Good food and A raffle , along with lots of fun!! And all proceeds will go to MSA Multiple System Atrophy. Small games of chance will be sold too. Jackpot will be $300.oo! Contact Margie Winters at 247-6255 for tickets.
May 11: MSA Awareness Walk, Tanner’s Beach, John Tanner State Park (Carrollton, GA USA)
Sponsored by National Parkinson Foundation Georgia
June 2013
Jun 16-20: Research Conference: 17th International Congress on Parkinson’s disease and movement disorders (Sydney, Australia)
MSA is on the agenda. Prof. Dr. Gregor Wenning will present
July 2013
TBD: Bike Ride in Support of MSA (Chicago to Rockland, Maryland ~800 miles!)
I am looking at either the first half of July or late July/early August for the fundraising/awareness-raising ride (~800 miles) I want to take from Chicago to Rockville, Md. If any of the MSA community in NW or central Indiana, central Ohio, western Pennsylvania, the West Virginia Panhandle or western Maryland down the I-70/270 corridor would like to help logistically or perhaps even ride a segment or two with me, please message me directly - Neil Versel
Jul 19-20: Move For Mary is running in the Chelanman Triathlon for MSA awareness
Jul 21: The Finnerty Family Party (JP Fitzgerald’s Hamburg NY)
Jul 31: Research Conference: EFAS Meeting 2013 (Giessen, Germany)
Update on Multiple System Atrophy
Chairs: Janice Holton, UK and Gregor K. Wenning, Austria
13:00 – 13:30 Molecular neuropathology of MSA – Janice Holton, UK
13:30 – 14:00 Translational target validation in experimental MSA models – Nadia Stefanova, Austria
14:00- 14:30 Natural history and biomarkers – Wassilios Meissner, F
14:30 – 15:00 Recent phase 2 and 3 trials in MSA – Gregor K. Wenning, Austria
August 2013
Aug 19: Fundraiser: Jean Danna Memorial Golf Tournament in support of Mayo Clinic MSA Research, Indian Hills Country Club, Stillwater MN, USA – Details TBA
September 2013
Sep 6-7: Patient/Family Conference: Sponsored by MSA Coalition (formerly SDS/MSA Support Group) (Milwaukee, WI USA)
Hosted by: Dr. Thomas Chelimsky (Board member, MSA Coalition)
There is NO FEE for the Conference. Food is provided by the MSA Coalition on Friday Night (Hors d’oeuvres and Beverages) and Breakfast and Lunch Buffets on Saturday. Beverages will be provided throughout the day. ***If anyone in your party requires a special diet, you must let us know specifically what your dietary requirements are when you make your reservation so we can give the hotel food supervisor notice of the special needs.
Tentative Schedule
Friday Evening:
6:00 P.M. – 9 P.M. Social Hour/Reception for Patients, Caregivers, Family Members and Healthcare Professionals
Refreshments will be served.
Saturday:
7:30 A.M. Breakfast
9:00 A.M. Medical Presentations
10:30 A.M. Break & Snacks
10:45 A.M. Medical Presentations
12:00 Noon Lunch
1:00 P.M. Medical Presentations
2:15 P.M. Break & Snacks
2:30 P.M. Medical Panel – Q & A
4:00 P.M. Patient/Caregiver/Survivor Breakout Sessions
5:00 P.M. Conference Closing
Sep ??: Fundraiser: Gene Rechsteiner Memorial (Bakersfield CA USA) – Details TBA
Sep 21: Fundraiser: Bill Brannon Memorial Car Show (Buttonwillow CA USA)
Sep 21-26: Research Conference: XXI World Congress of Neurology (Vienna, Austria )
Prof. Werner Poewe will chair a session “Update on atypical Parkinsonism”
Sep 25: International Ataxia Awareness Day (Around the world)
October 2013
Oct 1 – 4: Patient and Research Conference: World Parkinson Congress (Montreal, Canada)
MSA patients/family are invited, there will be one talk on MSA on October 3rd
Oct 3: World MSA Day (all around the world)
November 2013
Nov 9-11: Research Conference: Society for Neuroscience (San Diego, California USA)
December 2013
Dec 8-11: Research Conference: XX World Congress Parkinsonism and Related Disorders (Geneva, Switzerland)
Prof Gregor Wenning will speak on MSA
If you know of an MSA awareness or fundraising event you would like to see listed on this page please email pbower@accesscable.net