Multiple System Atrophy Awareness
Spreading awareness worldwide
About
What is Multiple System Atrophy?
Support and Education Resources
Ask Professor Wenning…
Event Calendar
Donate to MSA Charities
Help Spread Awareness
BENELUX – MSA ORGANIZATIONS
Benelux: Meervoudig Systeem Atrofie / Atrophie Multi-Systématisée(MSA-AMS)
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MSA Presentations
**NEW** MSA WEBINAR – MSA: Problems and Solutions (Dr. Golbe)
**NEW** Slides to accompany MSA: Problems and Solutions
MSA VIDEO Presentation – MSA and functions of the cerebellum (Dr. Schmahman)
Slides to accompany Video – MSA and functions of the cerebellum
MSA Awareness
In Memoriam
JiePie Awards for MSA
Miracles for MSA
MSA Awareness Ambassadors
Multiple System Atrophy Awareness Month
Our Original Travelling MSA Mascot – Tim's Shoe!
Our Travelling MSA Symbol – Paul's Hat
Our Travelling MSA Symbol – Susan's Hat: A symbol of courage
SONG: Closer
SONG: I have a dream
SONG: I will go on
SONG: Speak to me
Ways to spread awareness
World MSA Day (October 3rd)
Online MSA Communities
"shydrager" MSA Yahoo (since 1995)
Miracles for MSA
Regional MSA Groups USA
See more online communities
Organizations for MSA
AUSTRALIA
BENELUX
BRAZIL
CANADA
DENMARK
FRANCE
GERMANY
INDIA
ITALY
NEW ZEALAND
NIGERIA
SOUTH AFRICA
SPAIN
UK
USA
Clinical Trials and Latest Research
**NEW** 2011 – Genetic players in multiple system atrophy – unfolding the nature of the beast
**NEW** MSA Rating Scale "UMSARS"
Clinical Trials – Open trials for MSA patients
Join the MSA contact registry to be notified of upcoming research trials
Pubmed – Multiple System Atrophy Research Abstracts
MSA Pamphlets
*** 2012 – Top 10 things to know about MSA
2011 – FAQ Sporadic Ataxia and MSA
2011 – MSA Pamphlet by Vanderbilt Autonomic Dysfunction Center
2011 – MSA Some Answers
2012 – MSA Information pages from PSP Australia
2012 – MSA Pamphlet from NIH
2012 – SDS-MSA Support Group Pamphlet
MSA Pamphlet from Parkinson New Zealand
MSA Pamphlet from Parkinson Society Canada
Treatment and management of MSA – an overview (from the MSA Trust UK)
MSA Information
**NEW** Brain Donation Information
**NEW** Multiple System Atrophy by Roberta Granata and Gregor Wenning
**NEW** Multiple System Atrophy Primer
**NEW** The Challenge of MSA
**NEW**2013 BOOK: Multiple System Atrophy by Wenning, Krismer and Stefanova
2008 – BOOK – Parkinson's Disease and other Movement Disorders
2008 – MSA Diagnostic Criteria (2nd consensus statement)
2010 – Multiple System Atrophy Update by Professor Niall Quinn
2011 – BOOK – Handbook of Atypical Parkinsonism by Colisimo, Riley, Wenning
2011 – Sporadic Ataxia and MSA Research by Dr Sid Gilman
2012 – Multiple System Atrophy – Medscape Reference
2012 – Multiple System Atrophy – Wikipedia
2012 – Multiple System Atrophy from Patient UK
CurePSP Brain Tissue Donation Program for PSP, CBD and MSA
MSA page on Storify
Parkinson's Plus Conditions (includes MSA – A Parkinson's Plus condition)
Signs of Neurogenic Orthostatic Hypotension
Speak Up!
What is MSA?
MSA Blogs
**NEW** CANADA Blog: Kathy Dickison
**NEW** The MSA Blog – Official blog of the MSA Coalition
**NEW** USA Blog – Multiple System Atrophy Life with Dennis
**NEW**USA Blog: Lisa Birdsall Lind
See the full list of MSA blogs
MSA Research Associations
ADC: Autonomic Disorders Consortium
Association of Parkinsonism and Related Disorders
EMSA-SG: European MSA Study Group
JAMSAC – Japan Multiple System Atrophy Research Consortium
NAMSA-SG – North American MSA Study Group
View list of Researchers in the Autonomic Disorders Consortium
View list of Researchers in the North American MSA Study Group
MSA Newsletters
Because Hope Matters
MSA News
SMarRT NEWS from the MSA Trust UK
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