Multiple System Atrophy Awareness
Spreading awareness worldwide
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What is Multiple System Atrophy?
Support and Education Resources
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Event Calendar
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Help Spread Awareness
2011 MSA Awareness
Articles highlighting MSA in 2011:
2011-10-23:
A Birthday to Remember…
2011-10-08:
Des Plaines hero dog comes home a winner
2011-10-07:
Engineer remains upbeat despite challenges
2011-09-29:
Last chance to vote for Des Plaines hero dog
2011-09-06:
Annual SDS/MSA Support Group Patient Caregiver Meeting to be held in Dallas Oct 28-29, 2011
2011-08-09:
First group of science teachers-in-training …
2011-07-30:
Kirsty cooks up fundraising success
2011-07-21:
Pooch just part of the family
2011-07-19:
Fairborn city councilman battles debilitating illness
2011-07-18:
Fairborn council member, battling MSA, enters hospice care
2011-07-08:
Worldwide action: A mile and a candle for MSA
2011-07-07:
RAF Corporal wins groundbreaking court decision after being exposed to toxins by the MoD
2011-06-15:
Charity challenge is all in a day’s work for Sadie
2011-06-11:
Video: Danna Family Golf Outing – Multiple System Atrophy Research at Mayo Clinic
2011-06-07:
Bagshaws’ boost for MSA charity
2011-05-28:
Rushing MSA
2011-05-27:
Baby Steps: Siblings raise awareness of their mother’s disease
2011-05-21:
The Endevor to Bring Awareness to MSA
2011-05-17:
RAF Corporal to receive compensation for Victorian working conditions
2011-05-14:
Bowling for MSA Awareness
2011-05-11:
Daughters hold event in honor of mom
2011-04-30:
MSA Awareness Part 5 Another Journey
2011-04-23:
Frank Cervone and MSA Part 4
2011-04-21:
Dance to Raise Awareness for MSA
2011-04-16:
Frank Cervone’s Battle with MSA Part 3
2011-04-09:
Council Meetings with MSA
by Frank Cervone
2011-04-07:
Video: Volleyball player Yasmeen Dawoodjee(mother with MSA)
2011-04-04:
“Three Dates” by Frank Cervone
2011-04-02:
Fundraisers to benefit Multiple System Atrophy
2011-04-02:
Rare disease impacts two local families
2011-03-28:
Be Fair to Rare
2011-03-25:
Ex-RAF man takes on MoD at Court of Appeal over illness claims
2011-03-19:
Souders didn’t let disease rob him of service
2011-03-19:
Fairborn City Council member fighting deadly disease
2011-03-19:
Raise a cuppa for Ed’s marathon run
2011-03-18:
MSA support groups vital for patients, caregivers
2011-03-17:
March is MSA Awareness Month
2011-03-13:
Patient was first misdiagnosed and called “a phenomenon”
2011-03-11:
Widow Donates Husbands Brain…
See
Video
2011-03-10:
The Street: March is Multiple System ….
2011-03-10:
DMN Newswire: March is Multiple…
2011-03-10:
Yahoo News: March is Multiple System…
2011-03-03:
My MSA Journey – MSA Awareness Month
2011-03-02:
Bismarck woman raises awareness of rare disease …
2011-02-28:
March is Multiple System Atrophy Awareness Month
2011-02-27:
Multiple System Atrophy Awareness Month
2011-02-24:
A Patient’s Perspective and Multiple System Atrophy
2011-02-23:
March is Multiple System Atrophy Awareness Month
2011-02-21:
Profile of Westminster’s Ann Gerard
2011-02-15:
Rebecca Prosino: Every rare disease..
.
2011-02-12:
Video: Movement for Support and Awareness
2011-02-09:
Support group helps MSA victims, caregive
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MSA Presentations
**NEW** MSA WEBINAR – MSA: Problems and Solutions (Dr. Golbe)
**NEW** Slides to accompany MSA: Problems and Solutions
MSA VIDEO Presentation – MSA and functions of the cerebellum (Dr. Schmahman)
Slides to accompany Video – MSA and functions of the cerebellum
MSA Awareness
** World MSA Day (October 3rd)
Miracles for MSA
MSA Blogs
Multiple System Atrophy Awareness Month
Ways to spread awareness
Online MSA Communities
"shydrager" MSA Yahoo (since 1995)
Miracles for MSA
Regional MSA Groups USA
See more online communities
Organizations for MSA
AFRICA
ASIA
AUSTRALIA and ASIAN PACIFIC
EUROPE
NORTH AMERICA
SOUTH AMERICA
Clinical Trials and Latest Research
**NEW** 2011 – Genetic players in multiple system atrophy – unfolding the nature of the beast
**NEW** MSA Rating Scale "UMSARS"
Clinical Trials – Open trials for MSA patients
Join the MSA contact registry to be notified of upcoming research trials
Pubmed – Multiple System Atrophy Research Abstracts
MSA Pamphlets
*** 2012 – Top 10 things to know about MSA
2011 – MSA Pamphlet by Vanderbilt Autonomic Dysfunction Center
2011 – MSA Some Answers (from CurePSP)
2012 – MSA Information pages from PSP Australia
2012 – MSA Pamphlet from NIH
2012 – SDS-MSA Support Group Pamphlet
MSA Pamphlet from Parkinson New Zealand
MSA Pamphlet from Parkinson Society Canada
MSA Information
**NEW** Brain Donation Information
**NEW** Multiple System Atrophy Primer
2011 – FAQ Sporadic Ataxia and MSA
2012 – Multiple System Atrophy – Medscape Reference
2012 – Multiple System Atrophy – Wikipedia
2012 – Multiple System Atrophy from Patient UK
Treatment and management of MSA – an overview (from the MSA Trust UK)
MSA Research Associations
ADC: Autonomic Disorders Consortium
Association of Parkinsonism and Related Disorders
EMSA-SG: European MSA Study Group
JAMSAC – Japan Multiple System Atrophy Research Consortium
NAMSA-SG – North American MSA Study Group
View list of Researchers in the Autonomic Disorders Consortium
View list of Researchers in the North American MSA Study Group
MSA Newsletters
Because Hope Matters
MSA News
SMarRT NEWS from the MSA Trust UK
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